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A good friend of mine has been part of a group that created the Canadian Breast Cancer Patient Charter.
This charter validates what we all need and deserve as breast cancer patients through our treatment. I am a strong believer that information is power, and that we all need to be our own helath care advocates. Please post your thoughts or opinions on this new Canadian Breast Cancer Patient Charter, and thank you for stopping by to read this.
Canadian Breast Cancer
Patient
Charter
Principles of Care Delivery for Breast Cancer Patients in Canada
Recognizing that the Canada Health Act guarantees Canadians the right to universal, high-quality medical care delivered in a timely manner, as Canadians, we need to ensure that all breast cancer patients have access to:
? Timely and appropriate care by a healthcare team;
? Optimum standard of care and best practices, including prevention, screening, diagnosis, surgery, treatment, support, follow-up, reconstruction and palliative care;
? Comprehensive information and data about the best evidenced-based treatments and the optimum standard of care appropriate to each diagnosis;
? Psychological, spiritual and emotional support (often called ?psychosocial services?) and related information for patients, families and caregivers, including specialized services of psychologists, social workers, and oncology nurses;
? Nationally certified, high-quality screening, diagnostic and treatment equipment operated by accredited professionals;
? Treatment in a suitably equipped and organized practice, hospital or cancer centre;
? Comprehensive coverage of medical costs through Medicare, and where costs are not covered, information on financial assistance.
As a breast cancer patient, you have the right to:
? Make your own informed treatment decisions (including the right to pursue alternative or complementary therapies or refuse treatment);
? Define quality of life in your own terms;
? Be fully informed of all treatment options and data about best evidence-based treatments, even if they are not available where you are being treated;
? Information and educational material about treatment and available services;
? Receive information about follow-up care, and regular follow-up visits with healthcare professionals to monitor progress and discuss treatment needs;
? Be informed of the resources available to assist you with the financial implications and costs associated with your diagnosis;
? Receive information about clinical trials for which you are eligible;
? Refuse to participate in clinical trials without prejudice to your treatment;
? Privacy, confidentiality and personal data protection;
? Review your medical records;
? Obtain a second opinion to provide confidence in your diagnosis and treatment;
? Lodge a complaint;
? Freedom from discrimination because of a cancer diagnosis;
? Be treated by a qualified, interdisciplinary healthcare team that:
? Communicates in simple, clear and understandable language;
? Provides translation services if your first language is not spoken by healthcare team members;
? Provides sensitive, empathetic treatment;
? Respects your cultural, religious and sexual orientation;
? Modifies procedures to minimize potential harm.
Categories: None
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